Thursday, July 2, 2015

Healing From Pain-How I survived RSD/CRPS - Reflex Sympathetic Dystrophy-Complex Regional Pain Syndrome

Oct 2002–In the Beginning…My Story of RSD/CRPS

I guess I will start from the beginning with My RSD Story.  October 24, 2002 is a day that I will never forget for it changed my life in whole. Do not ever think it can not happen to you… because that is what I thought. We are not invincible, we are human beings.. and the choices we make will determine where we go and what happens in our lives.

We can choose to live a life full of pain or we can choose to embrace the gifts that God has given us, for every single thing in life that happens has a purpose - the good, the bad and the ugly.
I was confined to a wheel chair for a year. I was able to make the choice to not sit in that wheel chair for the rest of my life, even though the doctors told me my disease of RSD would just progress and get worse.

Don’t get me wrong, I know that some of us do not have the choice to get out of that wheel chair or a choice in what our physicality brings us in our lives.....But we do have a choice on how we think and how we choose to handle what has happened to us.

We can respond and use it as a positive, inspirational thing or we can  react and drown ourselves in our own sorrow; I didn't choose it at first... but now...I choose inspiration and being positive.

It took me a long, long time to realize what my purpose was in life. I felt sorry for myself, I was miserable, I was taking 18 medications three times per day that were prescribed by the doctor, and I used to say “I’m just  a plant-just stick me in the middle of my mattress and water me." because all I could do was lay there. lol

Little did I know that as I was laying there unable to walk, new seeds were being planted right beneath me; A new life was getting ready to grow right in front of my eyes. I was blinded for so long by my pain and my self pity and so overwhelmed with the feelings of losing everything.... My marriage, my home, and the worst part that I lost..was myself.

Within these blog posts,  I hope and pray that I continue to  inspire the survivors of RSD/CRPS or any other chronic Pain or incurable and debilitating dis-ease with my story.

So this is where my story begins...

October 24, 2002
I went out with some friends  to have a drink after work.  My teary eyed 10 yr old son stood in front of my truck and begged me not to go. I thought he was just being a child that didn’t want his mommy to go out. Little did I know that he was a protecting angel trying to send me a divine message.

At that time, I wasn’t listening. I just wanted to go out and get away from my problems. Me and my ex were always arguing. That night, he called and I couldn’t get a signal inside the restaurant... so being stressed out and frustrated by his many ignorant phone calls, I stepped outside to receive his messages on my voice mail. On my way down the steps exiting the restaurant, I slipped and twisted my ankle and my back in ways that any person’s body would not normally twist.

I stood leaning against the wall at the bottom of the stairs and was asked by the doormen if I was OK. I said, “I think so?” But as I walked around, I felt fine until I got home that evening.

When I took off my shoes to go to bed, My right ankle and foot were swelled up a little bit. I thought, well? it’s normal, I twisted it. When I woke up the next day, My foot was 3 times it’s normal size and I was unable to walk on it.

I went to the Doctors and they sent me for x-rays. No Break! THANK GOD! But I still couldn’t walk so I went home on crutches. Within 2 weeks, My knee was swelled up, red and burning like flames.  I was in so much pain that my doctor sent me to an Orthopedic Doctor. Within the next 3 years I had MRI's, X-rays, nerve tests, and all types of other tests finally resulting in getting a 3 phase bone scan. I was horrified with the results. There was not as much circulation in the right leg compared to the left leg.  They called it, “a diminished blood flow in the right leg as well as fluid surrounding the knee”.
After my Pain Management Doctor received the results, He diagnosed me with RSD/CRPS aka Reflex Sympathetic Dystrophy/Complex Regional Pain Syndrome. 
A dis-ease I have never heard of before was about to change my life forever.

“What was RSD and how do I get rid of it” I thought to myself because the doctor didn’t go into too much detail at the time.

So when I got home,  I started researching the internet and also asked my mom who worked with nurses to find out more about it. She called me and said somberly, “It’s not good, Lisa.”

I said, “I know Mom....I know...” and busted out in tears.  I knew then, my life would never ever be the same again…..

Continue Reading about My RSD Story of Survival in our next blog posts....
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